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conferenceseries
.com
September 25-26, 2017 Chicago, USA
3
rd
International Conference on
Parkinson’s disease and Movement Disorders
Volume 7, Issue 5 (Suppl)
J Alzheimers Dis Parkinsonism, an open access journal
ISSN: 2161-0460
Parkinson 2017
September 25-26, 2017
J Alzheimers Dis Parkinsonism 2017, 7:5 (Suppl)
DOI: 10.4172/2161-0460-C1-031
Tourette syndrome inArgentina
Andrea S Bonzini
ISA, Argentina
I
will briefly explain my own story about how I created the Association. When my daughter was 8 years old – at present she
is 20 - she was diagnosed with TS. It was a long 2-year journey until a diagnose was reached. When my daughter was 6 year
old I began to notice several tics. During a routine control with her pediatrician, who knows her since she was born, I told
him about certain sounds she made and I insisted on these tics such as winks and short head movements. Of course I received
the same answer, “there is absolutely nothing wrong with your daughter”. As the year went by and the situation worsened for
new problems appeared such as anger and some phobia, the environment at home was one of constant fighting, screaming and
swearing. Then came the string of doctors and medical studies, until a final diagnose was reached. At that time my daughter
was 8 years old. Then came hard years, years of research, years of acceptance, years of trial and error, good and bad doctors,
struggling with family and denial, years of explaining to all her teachers and to the parents of her classmates. Years spent
explaining that she was able to do the same things like any other girl her age first, then as a teenager, years sending medication
to camp trips, to a graduate trip, with the look of apprehension for the responsibility and especially the fear of people who did
not understand that it was neither dangerous nor contagious, that they just had to make sure she took her medication and
played, enjoyed, danced, sang, etc. We thought it would be a good idea to transmit all the experience and research to other
families with children with TS. On September 19th, 2012, the Argentine Association for Tourette Syndrome was created,
primarily to inform and educate teachers that our children would not have a bad experience throughout their school years, the
most important experience of their growth. AATS is a non-profit association where all is done with the heart and with one’s
own efforts, besides the collaboration received from professionals attending the conferences. The workshops were declared of
Educational Interest by THE LEGISLATURE OF THE AUTONOMOUS CITY OF BUENOS AIRES also BY THE NATIONAL
MINISTRY OF EDUCATION - Commission of Public Health and of Education of the LEGISLATURE of the PROVINCE OF
BUENOS AIRES – and by The National Institute against Discrimination. Our Facebook page includes over 18000 people and
there are many countries throughout Latin America. Our purpose is to spread, inform and educate because we believe that
children must have a happy education, where they can enjoy going to school and not coming back crying because of lack of
information on behalf of teachers, principals, classmates and families.
astourettearg@gmail.com