Journal of Alzheimers Disease & Parkinsonism
Open Access

Abstract

Background: Family carers and people with Young-Onset Dementia (YOD) require tailored assistance as dementia progresses. A variety of health care services is needed, including supporter services. To our knowledge, research focusing on experiences with the supporter service is scarce. Aim: To evaluate the supporter service by examining how primary family carers experience the assistance provided. Method: Qualitative interviews with 16 primary family carers of people with YOD were performed from 2014 to 2015. Content analysis was used to analyze the data. Result: Three main themes emerged from the interviews. First, a good match focused on the carers� experiences of the relationship between the supporter and the person with YOD and included three subthemes: A nice, empathetic personality, a friendship-like relationship and the content of the meetings. The second theme, relief, addressed the carers� experiences with the service. The third, coordination, concerned the carers� relationship with the health care service. aud.johannessen@aldringoghelse

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