Lewy Body Dementia Association

The Lewy Body Dementia Association was founded in 2003 to promote research into conquering the disease while assisting those who are affected by it today. Read below to learn of our progress toward these goals. LBDA Collaborated with Mayo Clinic on the 2015 International DLB Conference. LBDA Launched 2nd year-long Lewy Who national public awareness campaign and developed LBD education program for national distribution in collaboration with Senior Helpers. It Launched 1st year-long Lewy Who campaign in 2014 to raise public awareness of LBD. In 2013 it successfully advocated on behalf of LBD families to influence the research strategy on LBD developed by the National Institutes of Health, as it pertained to the urgent need for clinical trials. It has collaborated with National Institute on Aging on the first LBD educational publication by the National Institutes of Health. It also reached national audiences via digital distribution of public service announcement on LBD by Whoopi Goldberg. It has raised awareness of LBD via national distribution of public service announcement by Kelsey Grammer. In 2011 Launched first nationwide LBD awareness movement and hosted scientific conference LBD Biomarker Symposium in collaboration with National Institute on Neurological Disorders and Stroke. It also successfully advocated having LBD added to the list of Compassionate Allowances for Social Security disability benefits. It also launched national network of support groups and national distribution of LBD educational literature to all Area Agencies on Aging. It published first white paper on LBD research and clinical care in 2008. LBDA organization incorporated as a non-profit in the US. First LBD educational and caregiver support resources launched and Scientific Advisory Council created in the year 2003.