Celiac Disease

physicians are re-examining established ideals of patient privacy and professionalism. While the rise of social media within patient care raises real concerns, web-based applications – such as Facebook, Twitter, Google+, Doximity, web blogs, instant messaging platforms, and video chat – represent a growing medium for patients to interact with other patients and social media-savvy health care providers. In gastroenterology, the online celiac disease (CD) community is the largest and most established network of patients exchanging ideas and experiences. Within reasonable organizational frameworks, the collective voice from the celiac community aims to raise awareness about important health policy issues affecting CD patients, such as dietary adherence to the gluten-free diet and the current dilemma of under diagnosing patients with silent CD. Under the auspices of marketing strategy, researchers are gleaning abundant personal information about patients through social media – to no one’s surprise. Yet, physician-led research is slowly acclimating to this new approach to collecting patient-reported data, although some investigators are increasingly open to new ways of collecting data through social media.

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Last date updated on November, 2024