Thalassaemia International Federation

This vision is to establish equal access to quality health care for every patient with thalassemia and other hemoglobin disorders across the world. Establishment of new and the promotion of existing national patient/parent associations for a strong patient/parents voice. TIF’s Plan of Action for a period of years describes in adequate detail the planned actions and activities of the Thalassaemia International Federation in all targeted countries across the globe, can be read in this section. Today there is ample scientific evidence for appropriate diagnosis, monitoring and treatment of other, previously defined as ‘milder’ clinical thalassaemia syndromes, collectively given now the name “Non Transfusion-Dependent Thalassaemias”.